In the three months since we got home from our four week intensive at Virginia Tech (you can read about this intensive here: week one, week two, week three, and week four), I’ve been ruminating on what I learned throughout this intensive. Here are the top three things that have really stood out to me: Continue reading
Hello from Roanoke!
Yep, we’re still here. Three weeks down, one more to go.
This past week had us feeling a bit more like locals. We now no longer need to use GPS to get us to the local ADA accessible playground, we have a favorite breakfast spot, Bea and I have explored the Roanoke River Greenway several times, and Ziggy is now a regular at a puppy play center. We’re finally getting into the swing of things just as we’re starting to pack our bags to leave. Continue reading
During one of Solly’s therapy sessions this week, his therapists got really excited when he used his right hand to move a bead across a track, so they cheered, “Solly, you did it!”
And Solly replied, “I did it!”
Now, I haven’t heard him say this exact phrase yet, but I completely believe that he said it. I’ve long thought that Solly understands everything we say to him and part of his sensory issues (i.e., excessive biting, throwing his head back, flailing his arms) is simply him expressing frustration that he can’t find the words to respond to us. It’s like the words are in his head, but he struggles with which word to choose and how to get it out. Continue reading
Hello from Roanoke!
One week ago, we packed up a U-Haul and drove 6.5 hours (well, 8 hours, really, thanks to Bea’s insistence that we stop every hour to get out of the car and run around) to scenic Roanoke, Virginia. No, we didn’t move here – at least, not permanently. We’re continuing our nomad lifestyle and have uprooted our family – dogs included – for 4 weeks so Solly can participate in a constraint intensive therapy at the Virginia Tech Carilion Research Institute (VTCRI). Continue reading
A bit of good news for hump day
Hip health is a major concern for many people with cerebral palsy. The reason behind this is largely because spastic (tight) leg muscles can pull the hip out of the socket, causing hip dysplasia where the ball of the hip joint isn’t fully covered by the hip socket. The surgery to correct this is a major one with a long, painful recovery.
In other words: this is something you want to avoid if at all possible.
This is why, against our local doctors’ recommendations, we decided to have Solly undergo selective percutaneous myofascial lengthening (SPML) last year to give his tight muscles a release along with alcohol blocks to help loosen them up. If you’re new to our blog, I wrote a couple of updates on SPML at 2 months and at one year post-op, and also gave an update on Solly’s hip health at 6 months post-op. This surgery was a game changer for Solly’s gross motor development, giving him the opportunity to move his legs more freely so he can now walk in a gait trainer and independently propel his tricycle. Continue reading