The mornings are always the toughest part of the day. Besides the letdown of waking up to no baby kicking the inside of my belly and no baby sleeping soundly next to my bed, the first thought that pops in my head is: “Is Sol ok? Did he have any issues overnight? Are we going to get bad news today?”
We can call Sol’s nurse at any time of the day, which I typically make Mike do around 8am. (It is less scary if he makes the call.)
This morning, we decided to forego the call and headed straight to the NICU at 10am. Sol’s nurse for the day, Stephanie, filled us in on all the updates for the day as soon as we arrived.
The update: Sol is still on a roll!
Other than the news that there were no updates overnight (as if Sol is saying to me “Don’t worry, Mom, I got this.”), many positive changes are in store for the day:
– He took his new feed level well, so they are increasing feeds again, from 40ml of breast milk every 4 hours to 40ml of breast milk every 3 hours.
– Michelle from Occupational Therapy stopped by in the morning. She said he was very active and kept his eyes open for her. The two things she noticed were that his eyes tended to shift to the left and that his left side was less active than his right. The good news is that there are exercises that she will show us to help with both of these. She is also going to work with him a little every day this week, and then will help us get set up for in-home and outpatient therapy after Sol comes home.
– Speech Therapy also came by, but Sol was a bit too sleepy for her to get a proper evaluation. Stephanie did work with him on taking a pacifier, which he sucked on a bit this morning. He was happily sleeping with it in mouth when we arrived at the hospital.
– He is doing well on his current oxygen levels, so the team will move him to a lower level of oxygen on a less aggressive machine.
The plan for today is to have another head ultrasound and 12 – 24 hours of EEG. These will continue to check on brain swelling and brain activity, respectively. While it’s no fun to watch your child go through something they don’t like, we always get a kick out of Sol’s reaction to the EEG lead application process: his face gets red and he vocally complains each time they blow cold air on his head to affix each lead. After having a sleepy baby for a week, it’s nice to see a some attitude come out of the little man.
To everyone keeping Sol in their thoughts and prayers, thank you. We are so encouraged by Sol’s progress and by everyone’s messages, and we know that so many prayers have already been answered. I hope to have more positive recaps for you as we move through the week.
One thought on “NICU Day 9”
So encouraged as I read your updates Camie. Sounds as though Sol has the resilience of the Griffith family and what a blessing. Lots of prayers going up for Sol on Hilton Head Island. Love & hugs to all.