Once upon a time when we were just getting our sea legs in the world of therapy and diagnoses, I envisioned a time when Solly would magically get up and start walking. It seemed that every day a new video would pop up on my Facebook or Instagram feed that said something to the effect of “this child was told he’d never walk or talk, but look at him now” showing a video of a child taking his first steps at age 2 or 3 or 4.
When Solly was between the ages of one and two, I simply followed the process – therapy once or twice a week, working on some exercises at home, going to all suggested doctors appointments – and I waited. I waited for that magical moment where I could celebrate my son taking his first steps – delayed, but not too delayed – despite the doom and gloom prognosis doctors gave us in the beginning.
We never got that magical moment. In fact, during this time, Solly hit a plateau in therapy and stopped making any progress. I began to feel hopeless.
If you’ve been following our story for a while, you know that we started focusing on intensive and alternative therapies about two years ago, when Solly was two and a half. As a result, Solly hasn’t magically started walking yet, but he has made measurable gains. It might not seem like much to the regular Joe, but those who are closest to Solly have noticed how much progress he’s made. As we started noticing new developments, I started noting them in my head as “inchstones”, a term I’ve borrowed from Moms of special needs kiddos to celebrate when a gain isn’t quite a milestone, but is moving in the direction of one. Continue reading