Setting Goals for Intensive Therapy

img_0597We’re in the final week of our fourth three-week intensive at NAPA Center. Once we wrap up on Friday, we’ll have completed a total of six intensive therapies with NAPA and several at other clinics, and while I’m far from being an expert in navigating the world of intensive therapies, I now feel confident in what to expect when we walk through the doors on Day 1 of an intensive.

While there is a lot of planning and paperwork that goes into an intensive, without a doubt, one of the hardest parts of intensive therapy – aside from managing Solly’s fatigue and constant need for motivation – is setting goals at the onset of treatment. Goals are vital to the success of intensive therapy. They help the therapy team understand what I envision for Solly; they guide the therapy team in developing a plan for the duration of the intensive; and they can also dictate Solly’s confidence throughout the intensive therapy. Too easy and he quickly becomes board. Too hard and he doesn’t want to participate. For these reasons, there is quite a bit of pressure for me to fine tune our list of goals before starting an intensive.

Continue reading

New Year, New City

I have struggled to write this post. I’m not sure why, but it’s been hard for me to put into words why we decided to pack up and move our family to Los Angeles at the end of 2019.

Maybe it’s because four years earlier, we’d moved to Nashville to be close to family. Maybe it’s because after three years there, we’d finally assembled the right therapy and medical teams for Solly. Maybe it’s because people usually move for work: it’s unusual for a family to move for the well-being of their child.

But that’s just it. We moved for Solly. We moved for Bea. We moved for our entire family. We began 2020 as residents of Los Angeles.

img_0069

Continue reading

Special Needs Sibs are Special

When your first child has special needs, you question having a second child.

You worry if they too will have a medical diagnosis.

If typical, you worry about their relationship with your first child. Will they be resentful? Will they know how to play together? What kind of relationship will they have? Will they bond?

You worry about your own relationship with them – will I have enough time to devote to them, considering my child with special needs requires so much of my time?

We had ALL of these worries when we were planning for Solly’s little sister, Bea. Once she arrived, though, those worries started to dissipate. Bea is 100% typical. She’s a chunky, milk lovin’, Sesame Street obsessed 21 month old. And she loves her brother to pieces.

img_2135

Sweet Bea

Continue reading

Solly’s First Day of School

Well, this happened last week.

img_2040

Solly’s First Day of School

After a sleepless night and crazed morning on my part, I woke up Solly, dressed him in an outfit that he’d picked out the previous week, and packed up his brand new school bag, then Mike and I took him to High Hopes in Franklin, TN. I wheeled him into his new preschool room, chatted with his teacher for a few seconds, and then tried to give him a kiss goodbye – at which point he quickly pushed me away because, you know, preschool boys are too big for kisses from their Moms.

And then it became official. Solly is a preschooler.

Continue reading