A Coffee Date

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Two little rascals

You know what happens when you have two babies under the age of 3? You drink all the coffee and don’t sleep a whole heck of a lot, let alone write blog posts.

I have had so much to say – so much has happened over the past couple of months – but at the end of the day once both babies are in bed, I struggle to get the words out of my head. Instead I usually let my brain ooze while I watch the Bachelorette and drink a glass of wine, promising myself that I will write that blog post tomorrow.

So, friends, grab your coffee (I’m already on my second cup while en route to a therapy appointment), and let’s have a coffee date – I’ll catch you up!

  • On May 24th, Solly and I completed our first round of hyperbaric oxygen therapy with our final, 40th dive. I found our entire experience of HBOT to be so positive and, most importantly, Solly had so many gains. You can read about experience with HBOT here and here.
  • The next day, we packed up our lives in South Carolina and – with the help of Nana and Papa – Solly, Bea, and I flew back to Nashville while Mike drove home with Solly’s equipment and our pups. Given all of Solly’s gains with speech during HBOT, our two short flights were wild with Solly laughs and squeals. You know when you fly, there is always that one child who is screaming during the entire flight? Yep. That was Solly! And, boy, are we sure happy that he’s that kid now!

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    Nana and a wild Solly on the airplane

  • Just one short week later, Mike and I packed up the babies once again and flew to Summit, New Jersey, where Solly had a consultation and surgery with Dr. Nuzzo. This one is hard to summarize, so I’m putting a separate post together to cover our experience. (Don’t worry. Even though it’s about the scary, seven letter “S” word, it ends on a positive note.)
  • Back home in Nashville, Solly participated in a weekend of Anat Baniel Method intensive lessons. We loved seeing some of our friends there – and even met some new ones – and, of course, spending time with our ABM practitioners Jan and Mary.

It’s been a whirlwind two months, but thankfully we are staying put in Nashville for awhile. We’re getting Solly set up in new therapies, reconnecting with some of his old (pre-HBOT) therapists, and ramping up for some intensive therapies to help make the most out of some of the gains we saw from HBOT and Solly’s new, looser legs.

Off I go to a new feeding therapy evaluation with Solly where I will likely fill up my coffee cup one more time. Life these days requires quite a bit of caffeine, but Solly and Bea sure make it all worth it!

 

Wrapping Up HBOT

When we first started hyperbaric oxygen therapy, the idea of doing 40 dives felt so daunting. Perhaps it was only because we could do one per day – or perhaps it was because the idea of being squeezed in a tube with a wiggly (and pinching, biting, and screaming) toddler was a bit too much. But when we packed up Solly and Bea to head to our 40th and final dive, I found myself already missing the very special one-on-one time I was able to have with Solly every day.

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Spending Mother’s Day with my boy

When I blogged about the gains we noticed after the first 20 dives, I mentioned that Solly was acting more like a 2 year old than he ever had before (hello, emotions!), he began making new sounds and even came close to using words, his normally tight limbs were becoming looser, and he had gotten strong enough to start bouncing when in a kneeling position.

With the second half of our treatment, we saw those gains continue to strengthen and grow. For example, in his new favorite bouncy move, he started to shift to almost walking on his knees, moving his legs reciprocally:

On top of those, we really saw him become more interactive with his surrounding environment. Instead of simply lying next to me and only playing with me or watching a show on the TV, he became more interested in sitting up and observing what was going on outside the chamber. He’d play peek-a-boo with the person in the chamber across from ours, mimic someone standing outside the chamber, or just be snoopy and watch what the technician was doing. It was really cool to see this awareness develop!

We’re excited to continue to watch Solly develop and grow as a result of HBOT, and we only hope that we can continue to build on these gains. But for now, it’s play time until we move onto the next big thing!

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Swinging in the park at Hilton Head Island