The other day, I was listening to a podcast by Rachel Hollis about goal setting as it relates to running a business. In it, she walked the listener through how, at the end of year, she sits down with her calendar and goes through it day-by-day to tally up how she spends her time so … Continue reading Adding It Up: Appointments in 2018
Parenting a kid like Solly has taught me more than I could have imagined. I mean, I could probably write a book simply listing everything I’ve learned, from medical terms to therapy movements to assistive technology and more. My biggest takeaway so far is this: it’s ok to disagree with a doctor, specialist, therapist and … Continue reading There’s No “I” in Team
When we were on vacation, we received some news that isn’t great. Don’t worry: Solly is healthy and happy and nothing about that has changed. I’ll write more specifics later, but, in short, we were notified by a specialist that Solly might not be a candidate for SDR, a potentially life-changing surgery that would permanently eliminate … Continue reading Count Your Blessings
I’ve struggled with this post. I’ve debated on how much medical detail I should go into on a topic that I truly don’t know that much about. I also worried about sharing too much because, as I’ve learned by participating in support groups on Facebook, stem cell therapy is still very much in a research … Continue reading Our Stem Cell Therapy Experience
I’m snagging one of our beloved Nanny Jen’s favorite sayings for the title of this post. Any time Solly is being just a little bit crazy, Nanny Jen will say, with much flair and exasperation, “Solly, oh Mylanta!” To say that the past two weeks have been insanely busy would be an understatement. In the … Continue reading Oh Mylanta!